Thursday, March 29, 2018

February 2016 - Medical Luncheon Update, Catching Up with MHOH

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Catching Up with MHOH
 
As CHD Awareness month starts I reflect on where we were this time last year. 2015 was a tough year for Matthew and us as a family with an additional diagnosis of Plastic Bronchitis. I have watched Matthew struggle to breathe, a very helpless feeling. But thanks to our doctors at CHONY and a second opinion from CHOP, Matthew is doing well at the moment on twice a day twenty minute treatments with his vest and Levalbuterol nebuliser(cardiac version of Albuterol) with Q-Var inhaler. On our visits to the hospital last year we met some great CHD Warriors, sisters Ava and Bella, Morgan, their parents and siblings and they will all be part of the upcoming documentary called “The Art of The Heart”, the story of Matthew Hatcher.

We spent Christmas and New Years with friends and family and enjoyed quality time with them. Unfortunately a good friend lost her husband suddenly on December 22nd, he leaves behind three children, one in Matthew’s class.  Please keep The Steiger Family in your prayers as they adjust to life without Ron.  In the New Year, another family close to MHOH lost their son.  The Schutz family lost their son Joel on February 3rd and we know that Joel is up in heaven playing football, smiling from ear to ear.  Our love goes out to both families.

Despite the personal challenges of 2015, we as a foundation made HUGE Strides! In the coming weeks we will be dispersing close to $70,000 to 13 promising CHD Research Projects as well as a 3-D Heart Project at Boston Children’s Hospital to which we have committed $10,000 in 2016 as well 2017. Below is the list of grant recipients and their hospitals for this year’s grant cycle, congratulations to all of you.

Boston Children’s Hospital:
Dr. Laith Alshawabkeh
Dr. Sarah Goldberg
Dr. David Hoganson
Dr. Anthony Merlocco
Dr. Michelle Sykes

University of Rochester Medical Center:
Dr. Ryan Alanzalon

Children’s Hospital of Phildelphia:
Dr. Arene Butto
Dr. Monique Gardner
Dr. Michael Liu

Children’s Hospital of New York:
Dr. Nithya Swaminathan
Dr. Ranjini Srinivasan
Dr. Jonathan Flyer

Mount Sinai Hospital:
Dr. Ruchika Karnik

On January 21st we had a very special visit to Boston Children’s Hospital. We met Dr. Emani, Melissa Burke and Noah, the engineer who works on the 3-D Hearts. We delivered 100 “Hug a Heart” pillows in memory of Matthew’s friend Faith. We were joined by 5 members of the Boston Chapter of The Greek Orthodox Ladies Philoptochos Society including the Chair of the Children’s Medical Luncheon,Frances Levas. They saw firsthand the difference that their donation will make in the lives of children suffering from CHD through the 3-D Heart Project. It was all captured on camera by Drew Sauer and his crew from Quinnipiac University for the upcoming documentary “The Art with the Heart”. Stay tuned for more details on that!

Lastly we are gearing up for multiple “Hug a Heart” Pillow Projects in the month of February. We would love some help pre sewing the pillows to ensure that we have enough for the children to stuff, please contact mhatcher@matthewsheartsofhope.org  if you can help, many hands make light work!

With Sincerest Thanks For Your Support
Marie, Mike, Michael, Ryan and especially Matthew
 
 
Matthew's Hearts of Hope continues to make an impact in the lives of CHD children and their families.  Click HERE to read an article released by Boston Children's Hospital that sums up just how your support of MHOH changes lives!!!!
Pictured here are Jason Ayres with son Patrick, Dr. Emani, and Patrick’s 3-D printed heart.
Happy New Year to all!!!
Currently, 3-D hearts are not funded by insurance. Please make a donation today to help defray the costs of producing these hearts that are changing the way CHD is being treated and the lives of our CHD warriors and their families!!! CLICK HERE TO DONATE!
Copyright © 2014 , All rights reserved.

Our mailing address is:mhatcher@matthewsheartsofhope.org

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