Matthew continues to do great! He is still taking 8 doses of medicine a day but his Lasix is
decreased to 0.8 ccs twice a day and he has tolerated that well! He has also started to play soccer
with his brothers and loves it!
Senate Bill 56 has made great progress also. On March 7th Matthew and I along with some friends
went to Hartford to share testimony at the Public Health Committee Hearing on why we think
Senate Bill 56 is so important and to ask everyone to support it! They heard us loud and clear, on
March 9th they voted unanimously and SB 56 passed The Public Health Committee and the bill
headed to the Senate. On April 18th, Senator Michael McLachlan and Senator Terry Gerratana did
a great job speaking about the importance of SB 56 and it was placed on the consent calendar
meaning it was voted again unanimously out of the Senate. And so onto the House of
Representatives and again it was voted unanimously out of the House and now onto Governor
Malloy’s Desk who we anticipate he will sign it into law very soon!
We are also in the final stages of filing our paperwork to become an official Non for Profit
Organization, thank you Bernadette and Amy for all your help! Thank you to the Kids Care Club of
New Fairfield and Paula Flower for making 40 heart pillows on April 12th, you did a great job!
Thank you also to Representative Richard Smith for stopping by to show your support!
We have made our first delivery of heart pillows to Morgan Stanley Children’s Hospital Cardiac
ICU on March 19th and they were very well received! The children love them, see pictures below!
Thank you as always for all your prayers and support, I am feeling very blessed indeed as
Mother’s Day approachs this year, I have a lot to be thankful for!
See Below an update from Senator Michael McLachlan a great voice on this important piece of legislation in Hartford for us.
Sen. McLachlan Applauds Infant Heart Screening Measure’s Passage; Sherman Resident Has Pushed for Measure
Sen. McLachlan Applauds Infant Heart Screening Measure’s Passage; Sherman Resident Has Pushed for Measure
Senator Michael Mc Lachlan at the Public Health Committee Hearing on March 7th!
Left to Right: Billy Venezia holding a picture of Faith, Erica Venezia holding Hope, Faith's little sister, Olwen Gurry, Sean Pietras, Senator Michael McLachlan, Matthew Hatcher, Marie Hatcher, Dr Richard Berning.
Left to Right: Billy Venezia holding a picture of Faith, Erica Venezia holding Hope, Faith's little sister, Olwen Gurry, Sean Pietras, Senator Michael McLachlan, Matthew Hatcher, Marie Hatcher, Dr Richard Berning.
2 photos from the Heart Pillow Delivery on March 19th 2012! Above Girl PillowBelow Boy pillow
