Saturday, December 31, 2011
Friday, December 30, 2011
Merry Christmas and Happy New Year!
Matthew continues to do great! We saw Dr. Snyder on December 19th and we stopped his night time Lasix dose but after four days of morning vomiting, we restarted Matthew on a half dose at night and he has been fine since then. He continues to love Preschool and his speech is improving rapidly!
Matthew’s Hearts of Hope is officially incorporated with an EIN number and we will be filing our Non For Profit Paperwork in the next month. I am so thankful for all who have helped on this amazing journey and look forward to all the great things coming in 2012.
Christmas was very special this year mostly because my three boys were happy and “healthy”!! It has been quite the year, Matthew’s Cardiac Cath in May revealed Lower Venticular Diastolic Pressures which kept him off the Heart Transplant list and eligible for the Fontan. Over the summer, Matthew surgery was postponed twice due to illness and eventually when it was performed on August 17th by Dr Emile Bacha, it was done without ever putting Matthew on the heart lung machine and he came up to ICU extubated!! The recovery was tough with issues with pain control, constipation and Pleural Effusions but he recovered and along the way he continued to smile.
On September 27th, Matthew started Preschool, just shy of six weeks post operatively. Then “Hearts of Hope”, postponed due to the snowstorm but on November 12th an amazing night was had by all! December 9th Elizabeth Bradshaw presented at the Danbury Hospital Business Meeting and Pulse Ox Screening will be implemented in the New Year at both Danbury and New Milford Hospitals. A Committee has been formed and the first meeting is scheduled for January 12th. Also the local legislators will be meeting in early January to put together a gameplan for the Public Health Committee and the short session next year. I am optimistic that the great State of Connecticut will mandate Pulse Ox Screening on every newborn in 2012!
The icing on the Christmas Cake was Christmas Eve, when we were FRONT PAGE news in the Danbury News Times! I felt like George Bailey on” It’s a Wonderful Life”. Here is a link for the article! It was a hard year but a great year and this was a beautiful testament to all the hard work of many people who have helped. You all know who you are, whether you bought a necklace or a bracelet, made a donation or showed your support at “Hearts of Hope” or through prayers for Matthew….Thanks a million, Gura Mile Maith Agat, I hope you’re proud!!
Merry Christmas and Happy New Year!
Matthew’s Hearts of Hope is officially incorporated with an EIN number and we will be filing our Non For Profit Paperwork in the next month. I am so thankful for all who have helped on this amazing journey and look forward to all the great things coming in 2012.
Christmas was very special this year mostly because my three boys were happy and “healthy”!! It has been quite the year, Matthew’s Cardiac Cath in May revealed Lower Venticular Diastolic Pressures which kept him off the Heart Transplant list and eligible for the Fontan. Over the summer, Matthew surgery was postponed twice due to illness and eventually when it was performed on August 17th by Dr Emile Bacha, it was done without ever putting Matthew on the heart lung machine and he came up to ICU extubated!! The recovery was tough with issues with pain control, constipation and Pleural Effusions but he recovered and along the way he continued to smile.
On September 27th, Matthew started Preschool, just shy of six weeks post operatively. Then “Hearts of Hope”, postponed due to the snowstorm but on November 12th an amazing night was had by all! December 9th Elizabeth Bradshaw presented at the Danbury Hospital Business Meeting and Pulse Ox Screening will be implemented in the New Year at both Danbury and New Milford Hospitals. A Committee has been formed and the first meeting is scheduled for January 12th. Also the local legislators will be meeting in early January to put together a gameplan for the Public Health Committee and the short session next year. I am optimistic that the great State of Connecticut will mandate Pulse Ox Screening on every newborn in 2012!
The icing on the Christmas Cake was Christmas Eve, when we were FRONT PAGE news in the Danbury News Times! I felt like George Bailey on” It’s a Wonderful Life”. Here is a link for the article! It was a hard year but a great year and this was a beautiful testament to all the hard work of many people who have helped. You all know who you are, whether you bought a necklace or a bracelet, made a donation or showed your support at “Hearts of Hope” or through prayers for Matthew….Thanks a million, Gura Mile Maith Agat, I hope you’re proud!!
Merry Christmas and Happy New Year!
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