Matthew had his Cardiac Cath on May 11th and we got some good news! His Ventricular Diastolic Pressures are lower so the medications have made a difference. From a numbers standpoint he was 18mmHg a year ago and he was 14mmHG this time and normal is 10mmHg. They have decided to go ahead with The Fontan on June 29th, 2011. He is still a little risky but they feel it is best to do the surgery and see how he tolerates all the blood flowing through the lungs to be oxygenated. I am happy we are at this point and pray that all goes well. Thank you as always for all the prayers!
“Hearts of Hope” is all set for October 29th, 2011 at Danbury Hospital with a wine reception to follow. There will be numerous political figures attending as well as potentially some celebrities!! We have added to our product line and have some silicone bracelets now. They are $2 or just make a donation and we will get one to you! We are over $6000 in our fundraising efforts, thank you for all your support.
Also we are in the early stages of advocating for every newborn in the State of Connecticut to have a pulse oximetry reading done after 24 hours. The goal being that, more Congenital Heart Defects would be diagnosed sooner leading to better treatments and outcomes. It is the number one birth defect but many go undiagnosed!
