As always, God is good to us and we arrived home yesterday (Monday, 7/20) and Matthew and I are settling in to our new normal with a few more medications than when we left. Just need to stay on top of them and try to take it easy.
We are sending our records down the CHOP in Philadelphia so they can review everything and hopefully come up with a plan to treat the plastic bronchitis. Not sure where it will take us but it is our next step. Keep your fingers crossed that we find some answers that will make Matthew's life a bit easier for now.
Otherwise, we are just thankful for all of the support, calls, texts, emails, thoughts and prayers that come our way when these situations arise. Thank you again.
And, coming home to these guys is the best gift we could ask for!!!
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