Home Again - A New Normal

 

Hi everyone!  First we want to thank you again for all of your support over the last few weeks. We got home late last week and have just been trying to get into a rhythm with new medicines and new things to keep track of.  But we are thankful to be home nonetheless.

Matthew’s oxygen levels are holding steady at 92% to 93%. His appetite is much improved and he is slowly gaining back some of the weight that he lost.  He continues on twice a day Pulmozyme Nebulizer and Chest PT. We saw Dr. Sadeghi, the pulmonologist yesterday and he is happy with Matthew’s progress. His lungs sound good and he ordered a Chest PT Vest which Matthew will wear for 20 minutes every morning and night. Matthew has been homeschooled this week by his wonderful kindergarten teacher Mrs. Davidson, and the messages sent back and forth between his friends and him warmed all our hearts! He is very excited to return to school today Friday and see all his friends.

Although Spring Break wasn’t all we wanted it to be, we are happy to have Matthew home. We ventured out last night for a quiet family dinner to celebrate Mike’s birthday, we all enjoyed some much needed family time! Matthew has enjoyed watching the NY Rangers playing in the NHL playoffs with his brothers, although he wishes the NJ Devils were playing also, maybe next year!

We greatly appreciate all the prayers and messages these past few weeks, we felt them more than you could ever know!  Matthew is back to his smiling self again and that my friends is worth it’s weight in gold!