First and foremost, thank you to everyone for all the texts, emails, messages and phone calls and most importantly the prayers, my apologies for not responding to them all. Matthew is on the floor since yesterday. He continues to cough up casts but they are fewer and fewer and his oxygen is being weaned slowly. He is between 1 and 2 liters via nasal cannula and he is sating between 86% and 94%. We actually took a short walk outside this evening in the garden downstairs, it was so good to breath fresh air!
After some discussion with Matthew's doctors, we decided to send his medical records to Children's Hospital of Philadelphia for review. They have a program there that is specifically focused on Matthew's issue, Plastic Bronchitis and he may be a candidate for a procedure that they do, that can help alleviate these acute episodes of respiratory distress. We will likely be heading there in the coming weeks. We have added many more medications and treatments to his current regimen, 16 doses of medicine daily with 4 x 20 minute chest pt treatments with his vest. Matthew continues to smile through it all and laughed loudly tonight while face timing with his brothers and Nana and PopPop! Michael and Ryan are coming to visit tomorrow and we can't wait. We are hoping to be discharged home on Monday.
Thanks to Barbara Richardson for bringing dinner over tonight, I'm only sorry I wasn't home to taste it! Keep the prayers coming, we still have a long road ahead of us!
Thanks,
Marie, Mike and especially Matthew.
MATTHEW DOING WELL UPDATE FROM 7/14/15
Update from Marie from last night 11:00 pm
After
a long day in the ER, Matthew got admitted to Cardiac ICU where he is
surrounded by lots of people who know him and love him! He went to the
OR tonight for a bronchoscopy, right before he went in he coughed up a
large cast from his plastic bronchitis. He only spent one hour in there
and they were able to remove the few remaining casts. In true Matthew
fashion he had done most of the work beforehand!
He is back in ICU now resting comfortably on 4 liters of nasal cannula oxygen and is sating at 90%, as I always say God is good!
Thank you for all the texts, messages and emails and most of all the prayers, we are so blessed to be surrounded by such an amazing group of family and friends!
Good Night from New York,
Marie, Mike and especially Matthew
He is back in ICU now resting comfortably on 4 liters of nasal cannula oxygen and is sating at 90%, as I always say God is good!
Thank you for all the texts, messages and emails and most of all the prayers, we are so blessed to be surrounded by such an amazing group of family and friends!
Good Night from New York,
Marie, Mike and especially Matthew
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