Wednesday, July 22, 2015

MATTHEW MADE A NEW FRIEND AT COLUMBIA
Matthew has a new heart warrior friend named Morgan.  She just found out today (Monday) that she needs another open heart surgery Tuesday or Wednesday (we are still waiting to hear).
Please keep her and her family in your thoughts and prayers in the coming days and weeks.  We know this road so well and it was so great that Matthew had a chance to meet her.  I think it was helpful for both of them.

And for all of you local Sherman folks, she attends the Gunnery in Washington so you read the shirt correctly!!!! 

Monday, July 20, 2015

BABY S TURNED ONE YESTERDAY!!

In the midst of our crazy week a very special little boy, Baby S turned one, he is doing great, so blessed to be s part of his life!! Here is a note from his Mom!!!
Hi Marie,
It's been a while since we spoke.... But we always talk about your amazing deeds! We are forever grateful to you and your family. We just celebrated out Chaim D's b-day-can't believe it's already a year.

I grabbed this pic this morning and I felt I had to share with you!
You deserve it!!

Sunday, July 19, 2015

GOOD TO BE HOME
As always, God is good to us and we arrived home yesterday (Monday, 7/20) and Matthew and I are settling in to our new normal with a few more medications than when we left.  Just need to stay on top of them and try to take it easy.

We are sending our records down the CHOP in Philadelphia so they can review everything and hopefully come up with a plan to treat the plastic bronchitis.  Not sure where it will take us but it is our next step.  Keep your fingers crossed that we find some answers that will make Matthew's life a bit easier for now.

Otherwise, we are just thankful for all of the support, calls, texts, emails, thoughts and prayers that come our way when these situations arise.  Thank you again.

And, coming home to these guys is the best gift we could ask for!!!

Friday, July 17, 2015

MATTHEW OUT OF ICU -  UPDATE FROM 7/17/15
First and foremost, thank you to everyone for all the texts, emails, messages and phone calls and most importantly the prayers, my apologies for not responding to them all. Matthew is on the floor since yesterday. He continues to cough up casts but they are fewer and fewer and his oxygen is being weaned slowly. He is between 1 and 2 liters via nasal cannula and he is sating between 86% and 94%. We actually took a short walk outside this evening in the garden downstairs, it was so good to breath fresh air!

After some discussion with Matthew's doctors, we decided to send his medical records to Children's Hospital of Philadelphia for review. They have a program there that is specifically focused on Matthew's issue, Plastic Bronchitis and he may be a candidate for a procedure that they do, that can help alleviate these acute episodes of respiratory distress. We will likely be heading there in the coming weeks. We have added many more medications and treatments to his current regimen, 16 doses of medicine daily with 4 x 20 minute chest pt treatments with his vest. Matthew continues to smile through it all and laughed loudly tonight while face timing with his brothers and Nana and PopPop! Michael and Ryan are coming to visit tomorrow and we can't wait. We are hoping to be discharged home on Monday.

Thanks to Barbara Richardson for bringing dinner over tonight, I'm only sorry I wasn't home to taste it! Keep the prayers coming,  we still have a long road ahead of us!
Thanks,

Marie, Mike and especially Matthew. 


MATTHEW DOING WELL UPDATE FROM 7/14/15
Update from Marie from last night 11:00 pm

After a long day in the ER, Matthew got admitted to Cardiac ICU where he is surrounded by lots of people who know him and love him! He went to the OR tonight for a bronchoscopy, right before he went in he coughed up a large cast from his plastic bronchitis. He only spent one hour in there and they were able to remove the few remaining casts. In true Matthew fashion he had done most of the work beforehand!

He is back in ICU now resting comfortably on 4 liters of nasal cannula oxygen and is sating at 90%, as I always say God is good!

Thank you for all the texts, messages and emails and most of all the prayers, we are so blessed to be surrounded by such an amazing group of family and friends!
Good Night from New York,


Marie, Mike and especially Matthew